Boy was ‘perfectly happy’ before contracting a rare disorder which sees him rely on transfusions


A young boy saw his life suddenly change when he contracted an extremely rare disorder that means he has been forced to rely on constant blood transfusions to survive.

Josh Thew went from being a happy, healthy seven-year-old to being stuck in a hospital bed almost overnight in September 2018.

His mother, Hannah Thew first noticed strange bruises on his legs and took him to their GP for a check up.

A blood test revealed the little boy from Camden, south-west of Sydney, was suffering from aplastic anaemia, which meant he had stopped making enough blood cells to stay alive.

Aplastic anemia is a rare disorder that is usually passed on genetically or rare cases acquired.

Doctors have no idea how Josh ‘acquired’ the disorder.

The soccer-loving boy taken out of school and forced to depend on blood transfusions to stay alive.

‘His body was not making any of its own blood cells. So he was getting platelet transfusions at least every week. And then red blood cells were done every two-to-four weeks,’ Mrs Thew told Nine News.

‘He didn’t have a drop of his own blood running through his veins.’

Josh has had to live in almost complete isolation as his immune system was so low.

His condition also put him at risk of internal bleeding from a slight tumble.

After two rounds of immunosuppressive therapy his condition has been improving, his mother said.

The past seven months have been hard on Josh, his mother said, as he has missed his friends.

Josh was recently able to return to school part-time, which has been great as he has missed his friends, Ms Thew said.



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